Mom, you're having a stroke. I'm calling 9 1 1 and I'm on my way. A, stroke? But my body was fine. I could walk normally. And when I checked the mirror, I saw my. My face wasn't dropping. So it can't be a stroke. My dad had a stroke and I'd seen his whole left body paralyzed. That was stroke
I had the opportunity to speak to some specialists in the Stroke community. I was invited to talk about my experience in the hospital as a patient with aphasia, apraxia of speech and foreign accent syndrome. I'm grateful that the organizers included voices like mine, a patient with lived experience, along with clinicians, doctors, therapists, and researchers.
In this video, I'll be unveiling my identity and sharing my journey with stroke, aphasia, apraxia, and foreign accent syndrome. Get to know the person behind the conditions. I love meeting people. I went to the local pub and chatted with a new friend at the bar and it was only about 4 minutes before the question was asked, "Where are you from?" I'm from Hamilton, Ontario and am a third-generation Canadian. Why is this important? Because I now sound East European, Polish maybe. Instead of going through the details of my last year, this is my introduction video - what happened and how I came to speak as if I'm a new immigrant to my own Country. A Stroke, aphasia, apraxia and finally foreign accent syndrome... Oh my.
Do you suffer from Aphasia? Or do these symptoms sound familiar? You are searching for the right word but it just won’t come You mix up words in a sentence Words come out wrong or as nonsense words, e.g, ‘where is the train spation’ instead of ‘train station’ You say "Speeching" when you meant to say "Speaking" Your speech is halting and doesn't flow easily You have difficulty with numbers You have difficulty comprehending speech from others I'm with you. I also have aphasia. You are not alone and this might help watching this video.
Do you suffer from Aphasia? I'm not a therapist but I have aphasia and FAS. I'll share some tips and tricks that might help. Do these symptoms sound familiar? You are searching for the right word but it just won’t come You mix up words in a sentence Words come out wrong or as nonsense words, e.g, ‘where is the train spation’ instead of ‘train station’ You say "Speeching" when you meant to say "Speaking" Your speech is halting and doesn't flow easily You have difficulty with numbers You have difficulty comprehending speech from others I'm with you. I also have aphasia. You are not alone and this might help watching this video
In this video, how do you introduce your aphasia in conversation to people you don't know? Give it some thought - and I might have some advice to share. And I have a secret... Sometimes the secret is obvious - something that we learned as children. But as the saying goes, we've forgotten half what we once knew. How can you get your needs met? How do the people around you know what you need? And what you want? Friends, I'm going to tell you the secret! Today! On this very video! So exciting.
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. She and her husband now live in Oklahoma originally from Los Angeles, California. She has been living with Foreign Accent Syndrom since about 2016 and helps us answer some of the questions about the condition. (the original live video was posted on Friday, June 7, 2024 - this video is the highlights!) "Come on, admit that you're faking it" "Where are you from?" "When you are alone with your husband, do you still talk like this?" You have no idea the silly questions that we have been asked! Where you hear our accents, now that it is in the ear of the hearer. Neurological Doctor wanted to open a clinic about Foreign Accent Syndrome but they didn't have enough people affected to study. I'm happy that they didn't open because the doctor believed that FAS was only in their heads...and was trying to prove that it doesn't exist!
David Kilbride has FND (Functional Neurological Disorder) with FAS (Foreign Accent Syndrome). He shared his story bravely while experiencing a bout of gibberish; a part of his condition. I hope you enjoy this peek into what living with a condition like this is like. This is one of his favourite websites for information about the condition. https://neurosymptoms.org/en/ Functional Neurological Disorder (FND) – A Patient's Guide to FND (neurosymptoms.org) FND Australia And another authored by Jon Stone @jonstone69 https://neurosymptoms.org/en/symptoms/fnd-symptoms/functional-speech-swallowing-symptoms/
If you have had a stroke, or anything kind of brain injury that has affected your body, or your thinking, or your abilities, you might have experienced grief at what you have lost. I know I have. What have you done with that grief? Have you considered saying good-bye to the "you" you've lost and embracing the "you" that you are becoming?
Have you ever had a life-changing event that takes you from your anticipated trajectory? Something like an accident, a medical condition like a stroke or heart attack or a medical diagnosis like cancer, ALS or Parkinsons that will change your life drastically. It's OK to be sad. Or angry. Or to wish it away. But at some point, you will have to find a way to live again. One of the ways you can do this is by mourning what you have lost, and what you have lost in your future and then becoming open to the possibilities for your life. May I suggest having a funeral? Getting the news that you have lost something because of an accident or an illness is the first bracket, and then you do the "busy work" but at some point, you need to close this bracket....to be able to move forward in this new trajectory.
Stroke of Genius
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